Kingly News

News and views from a strange, continuing journey

Archive for the ‘Kids’ Category

Newspaper article remains visible

leave a comment

I started to post this when the article came out, and found myself unable to stop sputtering long enough to do so, still angry over the fact that some waste-of-protein had stolen my daughter’s wheelchair. Today I noticed the article is still available on The Daily Times Web site, so I wanted to link to it again (after having already done so on Facebook once).

Written by Donnell

February 26th, 2010 at 4:38 pm

Posted in Hannah

Tagged with , ,

Very, very grateful

leave a comment

I have three things to share with those interested.

  1. We have heard from health insurance that they will pay for a new wheelchair for Hannah. This will replace the one that was stolen. We think it likely it has something to do with how close she was to needing a new one anyway because of her growth–her new one will actually be adult sized, so it should serve her for a long time (normally, insurance will replace a wheelchair once every five years for an adult). Once again, there are hoops to jump through, but the folks we deal with there seem to genuinely look for ways to help within the scope of the insurance contract rather than seek excuses not to.
  2. A colleague, who shall remain nameless, handed me an envelope last week addressed to Hannah. When I opened it, I found a personal check for a very large amount of money. We are stunned by her generosity, and very grateful on Hannah’s behalf. We made sure she knew about the above news, and she said, “You have another fund for her (her room fund), so use it for that.” All I can say is: Wow. Thank you so much.
  3. Along those same lines, several individuals have made contributions to Hannah’s fund through a link on her own blog page. We’ve written privately to these folks to thank them, as well as to those who offered the use of their wheelchairs and strollers until we could get Hannah’s own wheelchair replaced. We’re very grateful for all of this.

That someone was scummy enough to steal a child’s wheelchair stunned me. That so many people (most of whom do not know us) responded so generously stuns me equally on the other end of whatever spectrum that is. I’m spending a lot of time stunned these days, in fact, which may explain why I walk around looking that way.

Written by Donnell

February 24th, 2010 at 6:23 pm

Words matter

leave a comment

For some reason, this is something that is just really striking me today. Just as we’ve effectively eliminated the N-word from American English, at least insofar as it comes close to being acceptable for polite conversation, we need to eliminate the R-word. Consider this more detailed post for my perspective on it.

Written by Donnell

March 20th, 2009 at 6:08 pm

New sister blog

leave a comment

Those who follow this blog might like to know about a sister blog and related project that is just starting.

All posts having to do with Hannah have been copied over to Guiding Your Special Needs Child. It’s not that we want to segregate Hannah, but rather that she is the inspiration for the new site and the book it will lead to.

Written by Donnell

June 16th, 2006 at 5:43 pm

Posted in Hannah

Caty has moved

leave a comment

We are very glad to have Caty with us now. It was hard on her and her mom, but the short version is that we all finally agreed for Caty to come live with us. This means a lot of changes for everyone. Without discounting the difficulties, we are still very glad to have her here.

Written by Donnell

April 28th, 2006 at 9:23 am

Posted in Caty,Kids

We’ve been home a few days now

leave a comment

Hannah came home on Monday. She wasn’t completely over the intestinal issues, but she was improving a great deal, gaining weight, and staying hydrated, so the doctors decided it was best for her to go on home so she wouldn’t be exposed to whatever might be floating around the hospital.

In the several days since, Hannah has continued to improve. In fact, we’ve started giving her Benefiber® to make sure she doesn’t get constipated.

Amanda and Barry moved into their own apartment on Thursday and Friday. This is the first time they’ve lived together in several years, since they were both teenagers. At that time, like most brothers and sisters, they were trying to kill each other. They’ve gotten old enough to actually enjoy each other’s company, so they’re hoping that sharing an apartment will be a good experience for them both. Of course, moving is an exhausting experience anytime, and I think they are both suffering from those effects.

Zachary helped them with their moving, too. He has developing into a strong, strapping young man, and his help is truly helpful. Today he did most of the yard, and probably in half the time it used to take him, even though he had to use a push mower since the riding mower is not functioning yet.

Meanwhile, Caty is staying with us again for we-don’t-know-how-long. We are glad to have her with us, but sorry for the circumstances. Her mom fell earlier this week, and hurt her arm badly enough that she thought she broke it. While it wasn’t fractured, it was painful enough that she couldn’t use the arm, and the pain medication made her dangerously unsteady on her feet. Yesterday she went back to the doctor, who sent her to the Blount Memorial ER, who not only admitted her to the hospital, but today transferred her to the University of Tennessee Medical Center. We’re not completely sure what is wrong, but we think it involves a staph infection. So Caty is with us until whenever.

Written by Donnell

April 1st, 2006 at 9:09 pm

Another Hannah picture

leave a comment

This picture was taken in February, before Hannah’s current hospitalization. In case you can’t tell, she really does not like hats. This is probably a great motivation for her to develop enough coordination to remove them.

Hannah and her hat

Written by Donnell

March 26th, 2006 at 12:07 am

Posted in Hannah,Photos

Nearing going home?

leave a comment

I find it interesting how many of the doctors hesitate to tell us when we might go home for fear of “jinxing” it. Just goes to show how human nature trumps intellect. One doctor would hint but not say, specifically saying she feared jinxing it, and another actually covered Hannah’s ears when she said the possible days.

But another came right out and said it, so if we don’t go home, I guess it will be her fault. (If you can’t tell, I’m smiling as I write this.)

The best estimate we have right now is Sunday or Monday. If she stays until Tuesday (which we hope she doesn’t, of course), it will be exactly four weeks that Hannah has been in the hospital.

For the medically-minded: her diarrhea continues (this poor child has had diarrhea of some sort of close to two months, between antibiotic-induced effects, followed by c. dif., rotavirus, and possibly smooth bowel syndrome which she has to grow out of), but her electrolytes are in balance and she is gaining weight, indicating that she is pulling enough nutrition from her food, and she is not getting dehydrated. The frequency of stooling (as the medical staff politely calls it) has reduced, the first step in actually getting over it, so they feel she would be better off at home (away from the germs that always are around a hospital, since that’s where sick people congregate) since we have all the oxygen equipment and home health support to be able to continue to support her in recovery.

Janet and I are, of course, exhausted, but it could be (has been) so much worse on us. We’ll be glad to get back home and, maybe, start catching up on the rest of life, which has pretty much been put on hold for nearly a month.

Written by Donnell

March 25th, 2006 at 11:48 pm

Posted in Hannah,Health

Hannah still in hospital

leave a comment

Hannah has officially passed her old record. Today is day 17. Many of her issues have improved, but the devastating diarrhea continues, and they’re not completely sure why.

Her fevers, which had been so high and uncontrollable, have been staying at a respectable 99 degrees. Her respiratory is back to normal, which usually indicates that other things have gone back to normal also, but not in this case. She is still receiving treatment for C. Dif and for her last UTI. Actually, they had finished the run of antibiotics for the c. dif two days ago, but because the indications are that she still has it, they are starting a different drug to try to combat it.

We have, still, absolutely no idea when we might be going home.

Written by Donnell

March 17th, 2006 at 2:14 pm

Posted in Hannah,Health

General news catch-up

leave a comment

This is weird. I was just certain I had posted about some of this, but it’s not here. I hope I didn’t delete some stuff from a backup or something.

Anyway.

You’ve seen in separate posts about Hannah’s latest hospitalization. This is some of what’s happening with the rest of us.

Barry is now working for U.S. Cellular—just finished his training, in fact, and he really likes his job, the people he works with, and the company he’s working for.

Amanda has broken up with her boyfriend. She and Barry are finalizing arrangements for them to share an apartment in Knoxville. So it will lead to changes in housing situations for a lot of us.

Caty had her tonsils and adenoids (at one time she told someone she was having her androids removed) taken out on Valentine’s Day. She sounds completely different to me now.

We had a birthday party for my mom on her 84th birthday. It really seemed to be a great surprise to her. We had all of the grandkids there, too. She got a combination VHS/DVD player, and now she’s trying to figure out how to work it.

I need to get back to the hospital, so more news later.

Written by Donnell

March 4th, 2006 at 3:48 pm